Life expectancy in cystic fibrosis is rising

A current evaluation makes it possible for the first time, the life expectancy for today, born with cystic fibrosis in Germany to predict. This is reported by researchers at this year’s German cystic fibrosis conference in Würzburg.

Cystic fibrosis is due to the progress in medicine is not a pure children’s illness. Today born babies with rare metabolic disease in this country are on average 50 years old. For comparison: Currently, the life expectancy of a healthy male newborn in Germany is 78 years, that of a female newborn to 83 years. The newly calculated characteristic values for the life expectancy of go back to data from the German cf registry. The Basis of the calculation of the period from 2012 to 2016.

The calculated life expectancy for cystic fibrosis patients is related to the individually very different totality of the patients in Germany. You can, therefore, only limited conclusions to be drawn on the Individual. All of the calculations, the current Rate of death is based, has decreased in the past steadily. In the reporting year 2017, with 48 deaths of people with cystic fibrosis have been documented.

The current figures are according to PD Dr. med. Lutz Nährlich, pulmonologist at the University hospital in Giessen, a good news for all patients and their families. They show that the people Concerned have the Chance today to reach a middle adult age. The fact that cystic fibrosis patients are getting older, mountains, Dr. Nährlich, but also challenges: The therapeutic care structures are, in many places, aligned to the fact that cystic fibrosis is a childhood disease. Here urgent development was needed to respond to the increasing number of adult cystic fibrosis patients continue to receive the proper care.


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